You are victim of Stevens Johnson syndrome/ Lyell syndrome (toxic epidermal necrolysis), and you wonder if it is possible to heal. Know that the medical profession remain often mute regarding that question. In fact, the long term consequences Stevens Johnson syndrome/Lyell syndrome can be very serious.

 

 

Below is a succinct presentation of the after-effects of Stevens Johnson syndrome/Lyell syndrome (toxic epidermal necrolysis) that we noticed.

Ophtalmologic after-effects of stevens johnson syndrome and
lyell syndrome (toxic epidermal necrolysis)

Often the most serious, leading to a risk of blindness, or even total blindness. Usually, very painful eyes, big photosensitivity (possible relief with scleral lens), keratitis, cornea ulcer, neo vascularization of the cornea (veil) ocular drought, lashes that sprout in an anarchical way.

 

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Photos of ophtalmological after-effects caused by stevens johnson syndrome and lyell syndrome.

 

 

 

Cutaneous after-effects of stevens johnson syndrome and
lyell syndrome (toxic epidermal necrolysis)

Cutaneous attacks can be harsh, thereafter a great sun sentitivity, sometimes requiring the use of cream daily. Here are 2 photos of a little girl several years after her stevens johnson syndrome :

 

     

 

For the victims of African origin, the stevens johnson syndrome / toxic epidermal necrolysis sometimes can let white stains on the skin.

Here is a photo of a victim before her stevens johnson syndrome.

 

 

Here is the same person after her stevens johnson syndrome caused by Allopurinol

 

Dental after-effects of stevens johnson syndrome and
toxic epidermal necrolysis (lyell syndrome)

They can be serious at dental level : loss of teeth (even all teeth) repeated dental cavities, requiring many dental cares, or insertion of crowns, baring of the teeth, parodontitis.Sometimes big sensitivity of the gums (bleekings).

Pulmonary after-effects of stevens johnson syndrome and
lyell syndrome (toxic epidermal necrolysis)

Dilatation of bronchi, respiratory allergy, runny nose, bronchitis.

ENT after-effects of stevens johnson syndrome and
toxic epidermal necrolysis (lyell syndrome)

 

Formation of corks in the auditory meatus, requiring regular visits to specialist to remove these corks.

Balance troubles.

Digestive after-effects of stevens johnson syndrome and
toxic epidermal necrolysis (lyell syndrome)

Indigestion, hunger pangs.

 

Fatigue

 

Some victims of Stevens johnson syndrome and toxic epidermal necrolyssis (lyell syndrome) complain about phases of intense fatigue, or even great weariness.

 

Cardiac unrests

 

Tachychardia.

 

Blood unrests

 

Leukopenia, Thrombopenia.

 

Body temperature

 

Case in pediatric age, who suffered from repetitive fevers several months after his stevens johnson syndrome , and also falls of temperature until 34,2C°

 

STERILITY, MISCARRIAGES

 

Case of a victim of stevens johnson syndrome/lyell syndrome (toxic epidermal necrolysis) in her adolescence, that probably leads to her infertility. Case of a young woman, victim of stevens johnson syndrome/leyll syndrome (toxic epidermal necrolysis) when she was 6 years old, who had repeated miscarriages.

 

DIABETES

 

Eventual starting, aggravation of an existing diabetes.

 

SLEEP UNRESTS

 

Insomnia,or very important need to sleep, one or the other alternatively.

Sleep apnea

 

MUSCULAR PAINS

 

Some victims of stevens johnson syndrome and lyell syndrome complain about muscular pains, and fragility to the muscular level.

 

JOINT PAINS

 

Several victims of stevens johnson syndrome / lyell syndrome complain of joint pains

 

HEADACHES

 

Some victims of stevens johnson syndrome / lyell syndrome complain of headaches, cephalalgy.

 

DEPRESSION

 

Some victims of stevens johnson syndrome and lyell syndrome often suffer from depression.

 

NAILS

 

Loss of the nails (they grow again in general, but not always)

 

HAIR

 

Sometimes total loss of hair (it grows again in most of cases)

 

Stevens johnson syndrome- toxic epidermal necrolysis
pregnant women

We have been informed of 5 cases (including one recent case in Luxembourg). In 4 cases the mother has a Stevens Johnson syndrome or toxic epidermal necrolysis during pregnancy, but children were born healthy . For the 5th case, the mother took a drug and nothing happened, while the baby had a stevens johnson syndrome in utero, the baby was born with many health problems and did not live long time.

This suggests that either the mother or the baby that makes the syndrome, but not both at the same time.Note: this is an indication looking the small number of cases that we know.

 

 

Would you like to know more about Stevens syndrome causal factors and Stevens Johnson syndrome lawsuits ? Avimed explains what Stevens Johnson syndrome is and provides information and support for cases involving alleged medical negligence.